Thank you! Thank you! Thank you!... I could go on. I have been struggling and advocating for my 16-year-old for years. It started as a syncope diagnosis, then migraines, then anxiety/depression issues, then hEDS, then long-haul mono.... getting to those diagnoses was not easy and treatment is a while other story. And now you basically present her life in a PowerPoint. I know we still do not have answers, and treatment is ongoing, but at least we know we are not alone. Someone gets it! There is hope.

These two videos have given me insight, hope, validation, and direction like no other dysautonomia resource has. Thank you!❤️

I feel like my 17 medical puzzle has been solved!!!!

Yay - this came up in my feed.  No "golden" pentad!  Really appreciated in the community of orphan illnesses!  Thank you, AJ!

Goddamn. There's a name. Where can I find help?

Again, such a bummer that he wasn't given more time to go into things the way he wanted. Still, terrific info!

This explains a lot about electrically sensitive people too!

Excellent. Thank you

Not sure why he never mentions that Hereditary alpha tryptasemia can cause all of these things. Ilc had dr vadas speaking about it at a previous conference. Also no one i have ever talked to has “grown out” of dysautonomia.  Theres also no mention of the genetic defects that can cause these syndromes.

Gut health!!!!

Looking for a friend with Pentad for the beta blocker you recommended. Her beta blocker keeps having to be increased. Thank you for making this video. As a friend, I need to know what's going on, too. The information, truthfully, is alarming - yet knowledge is what I prefer.

If anyone on here knows any doctors in LA that believe in this and help treat it, let me know. Most of my debilitating symptoms just hit me out of nowhere. I was a semi healthy and active 32 year old just a few months ago, but now I’m sure I definitely have the Pentad :/

Can we get dosages on the Choline and Pantethine please?

What about dizziness and dysfunction upon sitting ?

I've been taking horse chestnut extract and I think it's helpful with joints, fatigue and mood but the side effects are nausea, heartburn and diarrhea. Does anyone know I can do something about it? I would like to keep taking it as it is helpful with some things...

Midrione caused me stroke like symptoms and caused vasovasgal spasms i think was called and i couldn't move . Was terrifying ended up in hospital amd had to stop medication.  I am terrified of any meds as my body seems to ne so sensitive qmd goes even more haywire

Does anyone know the dose of Choline and Pantethine supplement please?

How do we reach this doctor?

My Dr put me on a calcium channel blocker. Amlodipine 2.5 mg. Is this similar to a beta blocker?

STOMACH ACID

Can  compression in scalenes or braxhail pllexus irritaringnof compressing nerve bundle cauze autonmic dysfunction or these receptor issues. Surgeon wants to do TOS release surgery.  Remove scalene amd rib resection and brachial neurolosis but im terrified of surgery and risks but wondering if this will help my symapthic system if its duento conpression