The perseverance of the chronically ill may be the most underestimated phenomena on this planet.  Seeing your relief is magnificent.  Love to you & your family.

As an hEDS person, I absolutely can't wait for the day when they find the gene for hEDS.  That wonderful feeling of nobody can question my diagnosis will be fantastic, when they figure it out.

I almost cried when you talked about how validating it feels to have a solid diagnosis! I have hEDS and I can only hope one day they'll find the genetic marker.

I appreciate you mentioning that EDS is a spectrum disorder! I have hEDS and I have never, yes you heard me, never dislocated any of my joints! People are always like, wait then how do you have EDS? And that frustrates me so much. I sublux often but just don't dislocate which is honestly a huge blessing. Glad you now know for sure what type of EDS you have!

I don’t have EDS but I have other chronic illnesses (GP, psoriatic arthritis, biliary/pancreatic condition, asthma, etc), and with each diagnosis, having testing that came back showing conclusive evidence that I did in fact have it, was a relief. It’s hard enough being sick but when you have a definitive diagnosis, nobody can tell you that you’re just overreacting or that it’s in your head or that you’re being dramatic.

I smiled so hard when you said genetic proof  - i felt that in my SOUL!!

In the future could you consider not putting music behind your video? I have an auditory processing disorder and it makes it very hard for me to hear what you are saying through the music. I’m so glad that you finally got an accurate diagnosis.

OMG I know this feeling! "I have proof that I'm not faking being sick" it's scary but in the end is reliving....

Im glad you found your answers and validation Mickey. I know exactly how you feel, the fear or invalidation can sometimes be more crippling than the physical symptoms. I have talked to so many “zebras” who were too afraid to even go to new doctors for fear of being questioned. It’s so sad to see that others in our community are now doing this to one another. How can we expect to be taken seriously if we are tearing each other down? Thank you for talking about this issue. Also, i’m so glad you no longer have to worry about vEDS. I know that is always a huge fear ❤️

Congratulations on finally knowing the truth! Having a chronic illness sucks, but having a chronic illness and being undiagnosed or misdiagnosed is just awful. Correct diagnosis is such a positive thing, I'm so happy for you! ❤

I completely understand the idea of validation. I suspected I had EDS for years and was told no and dismissed by so many doctors and people in my life that finally being diagnosed by the geneticist was such a relief and it validated everything I was going through so much.

I'm so glad you don't have vEDS! Of course having Classical doesn't change what's already happened to you and your body but I really hope that this new confirmation diagnosis may change your care so you don't suffer so much from not on <3

Getting a diagnosis can be so validating, no matter what it is for. I love that you pushed for testing!

So glad you know about this now. I have cerebral palsy and some other issues that my friends with it don’t have. People often misunderstand spectrum conditions. I love the videos you make.

So happy you got mental relief. I WISH I could just get someone to see I have EDS. 43 and still struggling and getting much worse. Bless your soul. Stay tough.

My genetic testing shows I have vascular and classical. They did imaging on my heart and there are no complications! Because there are no problems with my heart, my geneticist says I don't qualify for Veds. They said that they've never seen the gene for Ceds mutate the way it did in my family, so I can't be officially diagnosed with classical type. I thought I had answers, but now there are more questions.

Having been diagnosed with hEDS, hearing your story rings so close to home. Not having a clear concise gentic test to look at, none of my doctors even testing for any of the testable types, fills me with immense "what if" anxiety. Its such a terrible feeling of unknown, even with the diagnosis through the observational testing

I've been in that same boat and its so much of a relief to KNOW that there is a reason for why your body is so bad and sick. I love you!

"I have proof! No doctor can ever doubt me again." Gosh, I wish I could say that too. I have RSD/CRPS and most of the medical community I come across haven't ever heard of it or they've seen/heard the acronym but still don't even know what it is. I also totally feel you about surgery requiring extra protocols and being a serious pain to get through to people. SO glad you got your genetic information at your fingertips! Best wishes with your health!

This happens so much and is very important for patients to be their own advocate.

It sounds crazy to me that the original DR. Didn’t run blood test, that’s how you back up your findings.