This doctor is just a God sent. I hope she knows it.

I wish I can translate this into proper Spanish and all your conferences. The amount of people that need this information is just millions. An entire continent and more.
I would do it in a heart bit. Let me know

"Perturbed Axis" would be a good band name.

This was just so fascinating! I never knew the mast cells were the thing that heals your body! I had only heard about the reactions they cause. And I was just diagnosed with EDS today.

Wow!
I just got approval to visit the Mayo Clinic soon becauseof my Mast Cell Activation symptoms.  My grandson has a Connective Tissue Disorder.  Yep, the more I collect knowledge,  the more I self-diagnose.  However, I did spend a year in medical school.

Love this woman.  So down to earth.

Very, Very interesting!  Very smart lady and well spoken, easy to understand.  Thank you so much for this lecture!

So much of this applies to me, and I have yet to have a doctor take me seriously when I talk about all of my symptoms being connected. Wish I lived close enough to have an appointment with Dr. Maitland. Asthma, hypermobility, anxiety, chronic hives, interstitial cystitis, irritable bowel, SIBO. The older I get, the worse everything gets. :(

Incredible infirmation

Such imp information. I have yet to get a gastro who is willing to look for mast cells

Thank you.

My health story explained right before my eyes! All of the dots I have been connecting on my own, led by the first genetic test done for my daughter one year ago. We have a pretty damn interesting immediate and extended family "rare and hmmmm... we don't know what causes that" type of conditions. If I am able to catch the eye of any researchers, doctors and or any other beautiful humans with Ehlers Danlos Syndrome: dermatoporaxis type, hypermobile EDS, fibromyalgia, hives, shingles, IBS, gastroparesis, POTS, dysautonomia, and or many of the other comorbidities my daughter and I have ; )... please contact me!!!

Toxic mold exposure and pharmaceutical damage caused mine

What would you use to treat this if you have a patient who's allergic to azithromycin?

The house we live in has an asian ladybug infestation, and every year when they hatch I have exacerbations of my EDS symptoms along with MCAS symptoms

I tend to have high ferritin, and I have an allergic reaction to the proteins that make up ferritin, (glutamate acid and aspartic acids - excitotoxic) If I eat msg or aspartame etc, I am a lobster in a boiling pot. It does help to donate blood a couple times a year.

She’s such a badass.

Wow, watching my hives inflammation fade day after day until they completely vanished was such a relief, I went with what I pointed out and within the first 10 days or so the urticaria/angioedema was barely visible! I just go'ogled the latest by Shane Zormander and after 20 days my skin has never been healthier!

I wish all Doc wld see and listen carefully to this and find out how much better they cld be for patients if they'd stop running from EDS, Auto Immune and other dysregulation and difficult illness patients. They prefer easy patients.

There arent enough good Docs who are willing to get in the trenches and help complicatedly ill patients.

The more toxic the world has gotten, in every way possible, particularly man made items, the more all connective tissue is going to find it hard to cope with the many  offenders bombarding the bodies special gate keepers. Plastics, for example, are so heavily used and  obvious. So a young genious developed a paper bottle, but companies are slow to retrofit their mfgring processes...  Till it hurts the greater masses or someone they love. They'd rather deflect than take a temporary hit on the stock exchange. Its obvious..  Too many Docs are unqualified... And avidance 🙈 🙉 🙊 is their go to response.

My 21 year old is in complete GI shut down and is now on TPN and all IV meds including Benadryl, Phenergan , and Diazepam. She was inpatient for 23 days. During this time, she had a GI bleed that necessitated an emergency EGD. I convinced her med team (along with the help of Dr. Linda Bluestein, MD) to have pathology to look at her mast cells. The report came back "Normal number and distribution." But no actual count. I am wondering if I should assume they truly were normal or if I should push for real numbers. I heard in a webinar that anything >20 per high powered field is indicative of MCAS. Even before this GP flare and subsequent shutdown, she was on everything except comolyn sodium and ketotifen and the symptom charts are check lists. Any advice?