I was diagnosed with MS 2022 turned 59 yesterday
Thank you for voicing
Many of the things think about daily
thank you for your channel

Diagnosed yesterday. I have cried, laughed and laughed some more.  One day at a time.

As a nurse who’s been off over two months now, not knowing what’s going on with myself going to all sorts of appointments because they have to rule everything out. I feel like I’m losing my mind. I’m thankful that I stumbled upon you it’s helping me be able to put words together for my appointment with neurologist at the end of this month, because brain fog is real!  I don’t know if it’s MS, but mom has MS so idk but I have been dealing with (aka ignoring)symptoms for years. I just want to thank you. Keep doing what you do.!

I have lived with ms for 30 years.  Aging adds another layer to all of the symptoms you described with clarity.  Thank you for your compassionate descriptions of a very unpredictable and often frightening disease.❤ Dana

Please share more.  All the science.  I need to learn more as I live with someone who has progressive MS.  The brain is affected more than we typically find research on.

Hello, and thank you for taking the time to make these videos. I really appreciate it.  😊

I was diagnosed last week, even though I think I've had it for probably 5 years, and I'm learning all the things I can.  Thanks for explaining so clearly. It’s really helpful!

I really like the information you're sharing. Can you please not add music, I can't focus on what you're saying.

I was diagnosed in 1991.  I am South African and MS is extremely rare in South Africa. According to my medical records I started having MS around the age of 17 years - also quite rare as most people are diagnosed with MS in their 30's.  Thankfully I have also been an athlete - very physically orientated - swimming, hockey, squash, league rock&surf fishing and golf - all of which I was very good at.  I was in the South African Navy which required a level of fitness and after 10 years moved out into civilian life still very active in the sports I loved.  That was my saving grace - exercise.  I found and still find MS somewhat disturbing and confusing in that at every stage (and I had chronic progressive MS and was given 5 years to live) and then getting better - I felt that I was living a lie - some days some things worked and then all of a sudden wouldn't work for several weeks.  That thing can mess you up because no matter how hard you try to get back on the functioning side of things - it doesn't come back the way it should.  Thankfully I have always been a positive person and when I come across days that just don't make sense I think laterally as in if plan A doesn't work plan B will then C,D,E,F and so on.  I am 65 now - After being paralysed and in a wheelchair for approx 10 years in the begining and even during that 10 initial years, I and a friend started a swimming school and I taught nursery school children to swim - water helped me to stand and move children through the water - I taught adults and babies as well as children with disabilities. I had exercise classes for elderly people too. Exercise was and still is a wonderful way to build stamina and bring back functionality and coping skills no matter what age.  I also went back to university to study psychology.  Point is - you won't know what you are capable of if you don't try to push the limitations of your illness.  One lives with MS and is not dying from MS.  That is the difference.  When I was diagnosed my son was 3yrs going on 4. A wonderful man of 40 now.  The first few years of his life were when he and I were put in the same bathtub together by my husband as in "kill two birds with one stone" -our nightly bathing ritual. I may not have been able to properly bathe him but would attempt to wash his hair - I was virtually paralysed from the neck down, unable to do the simplest of tasks like cutting my food or brushing my teeth.  Today, I walk on the beach, go fishing and camping with my husband, drive to the shop, clean my home - MS is not a death sentence - it is a lifestyle of adaptation and when you are down - stay down and don't be pressured - take the day off and if people don't and refuse to understand - that is their problem - not yours.  Remember you have to live with you first - the world can wait till you are ready to pop your head out again.

I was diagnosed in 2015 or 2016 and I still feel like I’m new to MS because I feel like it wasn’t explained to me ever in a very detailed sense and I don’t know what that is and what something else I appreciated your video it was more than what any of my doctors had told me in the past I’ve had three neurologist two of them I thought were very good, but they skimped on the details thank you so much for adding them

I grieved who I was before MS. I didn’t pull out of it until I accepted it. I was a workaholic-I turned my new life into work around me. Cooking-I had to learn that I can make the same things I love but I had to modify how I made it. I handle pain by making crafts-this I love! Etc… my “work” turned into challenges of how I can make my life easier. My life has changed (dramatically) but I’m still me, and I love me 💗

This was helpful to me, I was diagnosed June of last year although I’ve been telling doctors something felt off about two years before. It’s depressing to me because I haven’t driven in three years. Trying my best to reconnect with my husband, but the heaviness in my legs don’t allow it.

Great info!  I’ve started looking after my niece who has ms.  Your videos help me understand her challenges and behavior.  Thank you!

The thing no one explained nor mentioned to us was how those lesions on the brain affect the patients overall wellbeing. Disassociation from reality , poor decisions, ability to work with others.  Denial of the disease.  May be an entirely different mental health disorder or related to MS?

Great info.  Thank you. Do more

Very informative video.  Thank you!

Ya know, I guess I'm grateful for at least being in a position that I can seem almost normal sometimes (not feel it, but seem like it). But then, being in the "in between" normal and sick can really suck. I'm not totally incapacitated, but I'm not totally able. It is so frustrating. And no one prepared me for that. And the grieving is definitely a real thing. Seven years later I'm still grieving that I can't work. I feel useless and unproductive. All my little hobbies are just to take up time during the day until my husband comes home and I'm not alone. I love my needle work and other crafts, but the fatigue limits my time spent on it and a lot of times I'm just too tired to even start something. It's sad because I've made so many cool things and now not so much.

10 g of Glycine is having a great effect on me.... MS 35 yrs .
Super with cacao for sleep , its sweet also . Really relaxing me ...... i was told nothing on diagnosis, that i should be grateful it wasn't Als........its only MS .
Thanks for this channel ...

Thank you 🎉

You're amazing! Thank you for your valuable insight and support.My mother, sister, daughter and I have all dealt with the challenges of MS>which has blown the minds of a few medical professionals:face-purple-wide-eyes: Mom and Sis are gone but my daughter and I are handling things well without medications. Blood type diet seems to help...