The Power Of Community: Cerys Davage & LGMD

Leanne's Wheel Life

Leanne's Wheel Life

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Ep.5
In this conversation, Cerys Davage ( @unbalanced with Cerys Davage) shares  her personal journey with Limb Girdle Muscular Dystrophy (LGMD), and what LGMD means to her beyond the physical.
How her love of teaching, music and performance has shaped and enhanced the community and supports she has around her.  
Cerys exudes warmth, humility and wisdom in this enlightening chat with Leanne.


Show Notes & Links

Unbalanced Podcast  Instagram. Instagram: unbalancedpodcast
Daniel Ferguson LGMD foundation.  https://dffoundation.com.au/
LGMD awareness foundation. https://www.lgmd-info.org
Cure lgmd2I Foundation.  https://curelgmd2i.com


Chapters

00:00 Introduction to Cerys Davage and LGMD
00:51 Introduction
01:54 Understanding LGMD: Personal Reflections
03:44 Changing dreams and aspirations
07:54 Acceptance and Diagnosis  with LGMD
10:06 Pivotal Moments: University and Independence
13:42 Joy in singing, piano and podcasting
15:49 The Perks of Being Disabled: A Disney Experience
17:30 Support Systems: Family and Relationships
19:20 Essential Gadgets and modifications for Independence
21:55 Resources for Navigating LGMD
23:50 Advice for the Newly Diagnosed