Ep.8
In this conversation, Leanne speaks with the delightful Shae Mankey about her experiences living with Facioscapulohumeral Muscular Dystrophy (FSHD). They discuss Shae’s career transition to Accessible Accommodation, the impact of childhood disability on her dreams and future aspirations. Shae speaks about the decision not to have children and her love for her husband, family and dog, ending with great advice for those newly diagnosed with muscular dystrophy.

SHOW NOTES
Accessible Accommodation
https://www.accessibleaccommodation.com/

The Accessible Group – Facebook
Facebook: accessiblegroup




CHAPTERS
00:00 Introduction and Acknowledgment
03:16 Transition to Accessible Accommodation
06:06 Understanding Muscular Dystrophy
08:57 Adapting to Life with FSHD
11:43 Reflections on Life Goals and Choices
12:36 Not all MDs are the same
14:31 Pivotal Moments and Independence
17:08 Joy, Support and Covid
19:58 Navigating Resources and Advice for Others
23:42 FSHD: it's just different
25:10 Thank you