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Fibromyalgia has over 200 symptoms!?!

The Fibro Show

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Fibromyalgia’s Frustrating Fiasco: Navigating a Maze of Symptoms. Join Sharon and Ginevra as they discuss the seemingly never-ending list of Fibromyalgia symptoms. The less commonly talked about Fibro symptoms include dry eyes, easy bruising, nausea, hair loss, chemical and food sensitivities and many more. This episode is a treasure trove of insights, highlighting the crucial role of identifying personal triggers, being your own advocate, and exploring a variety of treatments. They also delve into the intriguing possibility of fibromyalgia having autoimmune roots and share pivotal stories from their community. Tune in for a dose of hope and actionable advice for anyone grappling with fibromyalgia.

00:00 Introduction and Overview
00:32 Common Symptoms of Fibromyalgia
01:03 Food Sensitivities and Dietary Impact
03:13 Sensory Sensitivities and Daily Challenges
05:40 Your Cologne is Killing Me
06:11 Personal Stories and Advocacy
07:46 Exploring the Long List of Symptoms
10:30 Dizziness and Falls
12:16 Autoimmune Aspects and Research
17:08 Advocating for Your Health
26:34 Conclusion and Final Thoughts

Learn more about other symptoms including Overlapping conditions in our last episode
Better treatment begins by understanding t...

Learn about the hallmark symptoms of Fibromyalgia - If you have all these symptoms you might h...

The Ridiculously Long List of
Fibromyalgia Symptoms - https://www.invisibleillnesses.org.au...

Study on the link between dizziness, falls, and Fibro - https://bit.ly/dizzyfallsFM

About Sharon: One year after being diagnosed with Fibromyalgia in 1997, Sharon founded a Fibro Support & Education Group in Michigan that has grown into a national 501(c)3 non-profit organization called the Fibromyalgia Association. The Association provides support, education, and advocacy. She became a National Board Certified Health & Wellness Coach (NBC-HWC) to help people manage Fibromyalgia and chronic pain.

Learn more about Sharon and 1:1 Fibro Coaching at https://www.hwcsharon.com
Learn more about the Fibromyalgia Association at https://www.managefibromyalgia.org/
Join the Fibromyalgia Association community on Facebook - Facebook: FibroAssociation

Ginevra Liptan, MD developed fibromyalgia while in medical school at Tufts University. Using herself as a guinea pig, she was able to find enough effective treatment to get back to school and has dedicated her medical career to treating fibromyalgia. She is board-certified in internal medicine, with additional training in integrative and functional medicine. Learn about her treatment approach to fibromyalgia in her book The FibroManual: A Complete Fibromyalgia Treatment Guide for You and Your Doctor available on Amazon here https://amzn.to/41lgk4I

Learn more about Dr. Ginevra and sign up for her email newsletter at https://www.drginevra.com/

20 Comments

@X_Swayze_X 6 months ago

I always say that literally from head to toe, I have issues and pain.

@suwen4 1 year ago

Where is the list of 200 symptoms?

@ShellyAdalgo 8 months ago

And having fibromyalgia with perimenopause symptoms makes it even worse too,the symptoms are the same 😢

@UltraBirdMode 1 year ago

My fatigue is psychotic. Strange sensations and a overall dark feeling. Anyone else? This is basically 24/7.

@ronojoysen1548 1 year ago

Nice not to be alone any more.

@InsightVal 1 year ago

I am so over the gaslighting and dismissive looks, suspicion I am a googling attention craving hypochondriac twisting unrelated symptoms into something, etc. I have lived with myself for forever. I know all the illnesses/mystery pains since I was a child, that in my mind were just the prelude to my current state. I am not drug seeking - quite the opposite given my sensitivities - but I would like drugs I actually can process properly to get the expected result. I want to feel better. Most of all I just want to be believed. You guys are great and I thank you

@CoushattaL 1 year ago (edited)

I didn't realize my eye fatigue was part of my fibromyalgia! Also yesterday was a good day. Still had pain, still fatigued, but ble to get more things done. Today? I've been in bed all day, it's been hard. I'm glad I found y'all, because it's hard having this. Especially when many people think it isn't real still.

I get random chest pains a lot but I'm always like oh I guess it's just the fibromyalgia or the thoracic outlet syndrome. Sometimes I'm scared that it's actually not.

@saphiradragonden 20 hours ago

I relate to every single word of this. From perfume to ear plug, testing food intolerance and clothes hurting

@cyndiwilds 1 year ago

I believe that I fall into every category and have just about, if not every symptom regarding fibromyalgia. I came into the world with severe autoimmune via having eczema all over my body from the three weeks old. There are several other things that have triggered me overtime due to extreme stress, etc.… But getting off gluten was huge for me. I still struggle, extensively, but getting off gluten was a true life changer.

@tasharichardson401 11 months ago

I have had fibromyalgia for 15yrs now and upon my own research I came across a book named Unlearn your pain by Howard Schubiner and it opened my mind up tremendously. Once I started doing mind body work I was able to understand that my thoughts control the level of pain I sit in. I have discovered that I have been suffering from extreme anxiety for most of my life. I had been sitting in fight, flight, and freeze mode for most of my life. I also discovered I have generalized anxiety disorder, OCD, and have been in bouts of depression that I didn’t know what it was. If I can just get my mind to settle for 5min. My pain will go all the way down to like a 2. I feel like the ball is being dropped on research of how much the mind and the negative loops we stay in is a MAJOR contributor to fibromyalgia. I had been out here feeling alone and abandoned by my specialist until I read unlearn your pain and REALLY started doing the mind body work.

@Purplehazablazing 9 months ago

I know I'm even more clumsy when I'm hurting more. it does help. my doctor tells me to use my cane, walker or seat walker so I don't hurt myself.... sucks I do have a few food sensitivity. And when I went to the movies and day to day living I just thought I was getting a migraine coming on but the light hurts me sounds and when I worked back in 2008 in a supermarket. It was horrible! I was diagnosed yet but I had the same symptoms. I think I had this ever since I was a kid. I never felt good. But I could never explain how i felt.

@judydamelio2218 7 months ago

I've had fibromyalgia too for over 30 yrs. Hard to Diagnose if you can find a good rheumatologist!!! Painful condition to live with So many factors . Chronic pain can get to you mentally after awhile So much more involved. .

@robinwessel933 1 year ago

Thank you for starting this again. I have fibromyalgia and it really helps ❤

@tobylouckes2514 2 months ago

These symptoms are making me feel like I don’t have it though I have for 25 plus years.

@jaylynnthompson6836 1 year ago

I am the Princess and the Pea . I have always compared myself to this fairytale 😢 even as a child. I've hurt all my life. At 59. I can't stand for more than 5 minutes without vomitting. I have knots some as tiny as BBs those hurt the most . Thank you for sharing

@ChemWFelix 1 year ago

I have fibro, and the smell sensitivity is certainly something I experience. I can differentiate between everyone I know by smell and can even tell where people have been by the smells of the environment.

@stephaniethomas4554 1 year ago

Wow that is so true about low libido

@Judith-q7g 1 month ago

I went off gluten for 2 months but my clothing STILL HURT doesn't matter what I ate or didn't eat.

@SimpleCreationsByShanda 1 year ago (edited)

I love that you are sharing what you DO know. What I mean is, it gives us Fibro people something to compare our own symptoms to, even if no one has all the answers. It helps me sort out what might be Fibro and what maybe isn't. I'm in a hard place where I'm being put through a ringer of testing right now, specifically for Multiple Sclerosis, but my Primary won't even send me to Rheumatology to see if some of my symptoms could be Fibro instead. It's like every doctor I see ignores me when I say I have Fibromyalgia and I can't get it put in my "Chart" because I was diagnosed in the state I lived in before I moved here. They have no interest in seeing that medical report diagnosing me with Fibromyalgia and accurately getting the diagnosis added to my chart.
On a side note... I can relate to the hypersensitives, smells, sounds, foods and motion. Having food allergy testing and removing foods did help me with the smells also. Like you guys, I'm always the one that smells everything 😊