My wife was diagnosed with chronic vestibular neuritis 10 plus years ago and is still suffering. She only found out she had celiac disease last year. No doctor or specialist has ever even mentioned gluten ataxia to her. This actually makes so much sense. We will be bringing this up during her next examination. I will follow this with an update. Thank you so much!
I got terrible vertigo that made me sick and landed me in the hospital after my second Covid vaccine shot. It's been a month and I'm still unsteady on my feet. The room doesn't spin however sudden moves make me dizzy. I continue to work and play in the garden and just power through the physical moves. I fatigue easily now due to the extra effort staying steady. Hope this gets better soon. Seeing a neurologist next week.
You just explained the month-long process of tests I went through to finally get a diagnosis from my doctor that explains exactly what I'm experiencing and to know that I'm not dying even if I feel like it. It's been hell but I'm starting physical therapy soon.
Neurologists have noted a variety of cognitive effects caused by V.N.. It is understood that Medicine, as a scientific community is.. a bit of a "slow-moving ship" in that Outliers (either in the form of new data sets, diagnoses, and modalities; or in the form of being a proponent of same) run a risk of receiving push-back or penalty from established protocols within the medical landscape. While the need to establish validity of outcomes (to prevent misdiagnoses; or the adoption of unproven treatments of a spurious pathology) is of paramount importance, I cannot overstate the significance and value of integrating novel results and protocols in a timely manner. There is much data, compiled clinically AND anecdotally, over DECADES, regarding a panoply of cognitive alterations related to Vestibular Neuronitis (including, but not limited-to changes in speech-processes [stuttering, aphasia], memory-process alterations [short-term recall]), with clinically-documented alterations in brain construct [shrinking of the hypothalamus]. These changes are noteworthy, and deserve focused research.
I have had VN for 8 months. It’s awful. The anxiety is awful. I’ve been fit and heathy all my life. In April I had dizziness and sickness. Have had CT and MRI scans. Seen an ENT, cardiologist and neurologist. Various blood tests. Have a Vestibular Physiotherapist. I’m so much better I was in the summer. It’s soil destroying. I was dizzy for 8 weeks. Then with anxiety I had panic attacks. I had a bad virus prior to this. Thanks doctor! Fan from 🇬🇧
What a great informative video. The woman is asking the questions that a patient like myself would ask which is great and I love the way they’re being answered. I like how you said that is a heavy feeling which I coined as being cloaked. Throughout the day, I’m dizzy, but then there are times when I feel this heavy, feeling like there’s a cloak being thrown over top of my head. Anyhow, it sounds silly but I’m gonna be taking a Journal of when I’m being cloaked so I can understand it better.
I’ve read that antihistamine and other anti-vertigo medication’s can hinder the body from healing. Is this true?
vestibular neuritis (now called acute unilateral vestibulopathy) is one of the major causes of acute vestibular syndrome (acute onset of prolonged vertigo, imbalance, and N/V. HINTS-plus exam can diagnose better than MRI in first 24-36 hours. steroids improve outcome anti-viral drugs do not help patients should not receive meds like meclizine for more than a few day vestibular rehab very important to prevent development of persistent postural positional dizziness. better information - Vestibular Research Journal YT presentations
Can you have two of the conditions in the course of an infection, like vertigo and positional disbalance issues at the beginning and soon get the ear ringing and pressure, too?
This actually makes so much sense. We will be bringing this up during her next examination.
I will follow this with an update.
Thank you so much!