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Daily migraines.
40 years.

THANK YOU 🙏🏻

Omg I jump at most loud unexpected noises, I always thought I was just jumpy. Turns out it’s just part of being a migraineur.

Who else thinks these guys need to start a podcast channel all things migraine/brian stuff!? 🤍🤸

I would love more content on daily / extremely high frequency migraines. I genuinely have no idea how to get into a routine if you are so bedbound and nauseous that you cannot do anything regularly.

Of course anxiety and depression are related to Migraine. Just live as a woman, going to the doctor and have them tell you that "you don't know what you are talking about" and "It's all in your head" and "I'm the doctor and I know more about your body than you do", for a few years and tell me who wouldn't have depression and anxiety.

Thank you for addressing vestibular migraine. It’s miserable.

I have daily migraines /headaches. I have done almost everything the medicines the shots the pain management, chiropractor and the needles on my head. I had headaches for decades already. I retired in 2022 and moved out of US. I am in Panama and I take migretil medicine daily when I feel the headache is coming. My last resort now is I pray every night and asking God to get rid of my headaches.

I have a daily headache that will persist in migraine quickly. I went from episodic to chronic migraine refractory on 6/24/2025, this podcast has given me so much hope! Thank you!!!

Im so grateful to you both . To know this debilitating disease is so understood by you both is totally gratifying to me . Have so many of these other co morbidities . Great conversation . Thankyou both ❤

I was diagnosed with a T.B.I. After my deployment and have continual silent migraine attacks. Botox works well, however I need extra coverage than what is typically given in order for it to fully remove my attacks. (top of my scalp is also needing coverage/injections ). If you’re a veteran and considering Botox, The VA will do this but you have to request it. Without the extra coverage I find myself still having many days with my typical symptoms, which does not allow me to be a productive person.

I have migraines and vestibular migraines and pppd. The last 5 years have been horrible.

So you're telling me my migraine has been inviting over its friends menieres and 3PD behind my back. How rude of it

Brilliant presentation. Im a non responder with the cgrps so im thrilled to know about the potential of pacap . Thankyou for this indepth and illuminating  conversation .

Years of chronic migraine and cluster headache. Botox helped but only cut the frequency by maybe 25%. The best thing I started taking almost 1.5 years ago and what I’m still taking is Mounjaro 5mg. It’s cut the frequency down between 75-90% and it seems to be more effective the longer I’m on it. I’ve had it happen a few times now that I’ve gone 28 days without needing any suvexx. There really needs to be more research for Mounjaro for migraine.

I really really enjoyed this

I had great success with the Daxxify, but the insurance company decided to not cover it any longer because it isn't labeled for migraine.  Very hopeful there will be migraine studies soon!

I’m just starting treatment exploration. I didn’t realize that my arm neuropathy, shoulder neck and upper back problems, tinnitus, vertigo etc were actually migraine symptoms. I was seeing all sorts of various doctors but my neurologist prescribed a stronger migraine medication and all these other symptoms resolved temporarily. 😮

Thank you for such an informative presentation.

I have read everything available on chronic migraines. I had hormonal migraines after I had my daughter back in 1978. I took Advil because immitrex  in those days did not help. After my changes monthly migraines gone. Then around the age of 75 migraines returned and in 2021 went  to a neurological group. I started PT and massage and took Advil. I never have and do not have depression maybe stress taking care of my husband with Dementia. Then July 2021 I was doing 1 month of PT and my husband was admitted to the hospital and died by August 17, ‘21. I still cannot believe it what a rotten deal a physically healthy man and gets Dementia. I finally went to a neurologist in 2022 and 2023 however she never gave me any drugs but tried shots in my neck did not help and continued with Advil. Then 11/2023 I get Covid-19 and never felt right after that. I did not see the neurologist because I spent days in bed. By September 2024 my son takes me to the local Hospital and am admitted after many tests nothing. A week later I pass out in the bathroom taken by ambulance to the hospital more tests and some weight loss they find nothing however I kept saying long Covid and me/CFS no they say. By the way never smoked or drank always ate a Mediterranean diet. On to 2025 and not better throwing up for 6 months, hate smells on and on. I would spend two days trying to do one load of laundry and could no longer cook, clean barely get out of bed. By the end of 2025 I find a lump on why right neck. My primary immediately does an ultra sound and cat scan. Now Dx aggressive B cell lymphoma. Still dealing with daily migraines one Advil sometimes two helps. By January 2026 start Chemo done by May 2026 and my migraines are worse. Chemo was a breeze no vomit actually still tired but migraine and neuropathy are now bad. My Hematologist from Moffit Cancer Hospital recommended a neurologist at Moffitt. I see him in June 2026 took my history spent so much t8me with me did MRI of brain and spine, MRA of brain and neck find nothing. At my age now 80 will not give me Triptans and scared me of the long time use of Advil. Also at this point speak of rebound from overuse. My insurance would not cover Nurtec however Ubrelvy approved my share $630 for 16 pills two month supply. I start in July 2026 and nothing at all. So I took 5 pills and guess what suddenly my B/P goes through the roof, like 191/100. Did a chat with the company and they got back to me on email and offered nothing. I will not spend that money again on any C drugs. Doctors should be able to give the patient a sample to see for they work. So my primary adds Norvasc 5 mg to my other two meds and now my legs hurt and feet swell. After 4 days get off Norvasc and tell my primary it is poison. Now my pressure is down around 136/74 and that’s fine. On 9/1/26 I started Botox. Has not kicked in at all. Wake up my neck hurts my migraine starts. I take Tylenol once or twice a day. Will get more Botox in December hope it eventually  works. So here I am at 80 a once very active person who had a great life and now just a talking head no brain fog, family and friends cannot believe my memory. I want these daily migraines to stop and I want to walk normally again neuropathy is stopping me I use a cane and wheelchair when going to the hospital for tests or doctor appointments. Have you ever heard such a crazy story as mine???
Did I thank you for this very informative video. It is important to listen to everything available. I often wonder if other Physicians are listening also.