Dave, I’m there with you on the exhaustion, depression, & the empathy.

You were speaking to followers and thought I'd chime in. I found you on reddit while still trying to self diagnose a while back...still living in an undiagnosed bubble, but getting to a new movement disorder specialist at UW in July. I'm 35F, so no one locally wants to come close to helping me get a dx. I've experienced sexism and ageism at just about every appointment.
I watch your videos and think about you lots! Wish we could change the course of MSA. Hope this finds you "well."

Love your videos I to have got msa watching from australia kym

I have got early systems

My husband has been speaking to a man who was diagnosed with MSA P and C. He was in hospice for 18 months. I think he’s on year 13 since his diagnosis and he has a website that’s dedicated to what he did to achieve a state of remission.

I know this sounds like a pipe dream, but he’s legit. He had atrophy in his cerebellum. Which is now normal.

He’s a one in a million scenario and he comes from medical emergency background. He sells nothing, all his information is free. Let me know if you want the website link. It mostly consists around mitochondria dysfunction, gut micro biome and lectins/carbohydrates.

Dave, have you had a F DOPA PET Scan?
I had an abnormal DaT Scan but normal F DOPA PET Scan. I think the F DOPA PET scan is wrong based on all my symptoms and getting worse over the past few months