WARNING: This video shows the full process of drawing blood from Damian's IV port placed in his chest.
GoFundMe: https://gofund.me/24dc59ae
THANK YOU ALL SO MUCH FOR BEING WITH US ON THIS JOURNEY.
We are SO unbelievably grateful to finally have this first dose under our belt!!! Time will tell if it has an impact on Damian's brain deterioration, but faith and science give us a lot of hope!!! We will be continuing to document this journey closely and I'm hoping we'll be seeing my Damian start to come back soon!!! π
________________________________________________
πABOUT DAMIANπ
Damian is fighting a terminal genetic disease called ASMD/Niemann-Pick Disease Type A (sometimes referred to as "Baby Alzheimer's") and we're determined to do WHATEVER IT TAKES to expedite the development of treatment and save his life. Please help us #SaveDamian by sharing his story!!! We are SO CLOSE to finally defeating ASMD, for Damian and every child given this death sentence. Thank you π
________________________________________________
π LINKS π
GoFundMe: https://gofund.me/24dc59ae
Blog and More: https://www.SaveDamian.com
________________________________________________
π AS SEEN IN THIS VIDEO π
Tinukim iFeed Self-Feeding Bottle: https://amzn.to/3ukTkCp
WARNING: This video shows the full process of drawing blood from Damian's IV port placed in his chest.
GoFundMe: https://gofund.me/24dc59ae
THANK YOU ALL SO MUCH FOR BEING WITH US ON THIS JOURNEY.
We are SO unbelievably grateful to finally have this first dose under our belt!!! Time will tell if it has an impact on Damian's brain deterioration, but faith and science give us a lot of hope!!! We will be continuing to document this journey closely and I'm hoping we'll be seeing my Damian start to come back soon!!! π
________________________________________________
πABOUT DAMIANπ
Damian is fighting a terminal genetic disease called ASMD/Niemann-Pick Disease Type A (sometimes referred to as "Baby Alzheimer's") and we're determined to do WHATEVER IT TAKES to expedite the development of treatment and save his life. Please help us #SaveDamian by sharing his story!!! We are SO CLOSE to finally defeating ASMD, for Damian and every child given this death sentence. Thank you π
________________________________________________
π LINKS π
GoFundMe: https://gofund.me/24dc59ae
Blog and More: https://www.SaveDamian.com
________________________________________________
π AS SEEN IN THIS VIDEO π
Tinukim iFeed Self-Feeding Bottle: https://amzn.to/3ukTkCp