“I Know I’m Going to Die of Dementia” | Jordan Adams
On The Mend with Matt Willis
33,484 views
Mental health and dementia advocate Jordan Adams grew up watching Frontotemporal Dementia slowly take his mum away. Years later, a genetic test revealed that he carries the same mutation.
Jordan shares the unique grief of losing someone while they're still here, and what it means to live knowing he may develop the same disease that took his mum.
But rather than allowing that uncertainty to define his life, Jordan has turned it into a reason to live more fully. He talks about finding purpose through advocacy, carrying his mum's spirit with him, and why his diagnosis has become what he calls a “license to live”.
This is a conversation about grief, mortality, purpose, and choosing what you do with the time you have.
Themes: Frontotemporal Dementia, Grief, Genetic Testing, Mortality, and Finding Purpose.
Learn more about Jordan's work:
Jordan and his brother Cian share their story, raise awareness of FTD and support fundraising for dementia research through The FTD Brothers - https://theftdbrothers.com
Randox 👉 Head to the Randox Health website and check out the RanChip Insight 360 test. You can get a 10% discount by using the code OTM10 along with up to £250 cashback if you refer a friend https://highpfrmc.com/OTM-Randox-YT
AG1 👉 Head to http://drinkag1.com/onthemend to save £20 on your first month, plus a free welcome kit, Vitamin D3 + K2 and five travel packs
00:00 Watching His Mum Die From Dementia
04:27 The Signs His Mum Was Changing
07:29 Telling Three Children Their Mum Was Dying
09:08 Caring For His Mum And Losing Her
10:21 Discovering Dementia Could Happen To Him
12:04 What Is Frontotemporal Dementia?
15:24 Losing Two Family Members In Nine Months
17:02 Alcohol, Depression And Spiralling Out Of Control
19:32 Hearing The Worst News Of His Life
22:18 The Family Trauma Of Genetic Dementia
24:07 Depression, Self-Worth And Losing Motivation
25:39 Facing A Future Of Early Death
26:10 Marriage, Children And Preparing For The Worst
33:26 Living Against The Clock And Choosing Life
38:31 The Pregnancy Decision That Changed Everything
42:04 Losing A Child And Turning Pain Into Purpose
43:13 Blackout Drinking And Escaping The Pain
46:21 Why His Diagnosis Became A License To Live
49:15 Running A Marathon With A 25kg Fridge
51:46 Running 100 Miles With No Experience
53:49 Thirty-Three Marathons Across Ireland
56:10 Fighting For A Future Without Dementia
58:15 Fixing The Gaps In Young-Onset Dementia Care
01:00:24 Building A Legacy His Mum Would Be Proud Of
Need Support?
Samaritans: Call 116 123 or visit samaritans.org
Narcotics Anonymous: na.org
Alcoholics Anonymous: alcoholics-anonymous.org.uk
Mental Health Mates: mentalhealthmates.co.uk
Shout: https: giveusashout.org
IAPT: https://www.england.nhs.uk/mental-hea...
20 Comments
Jordan is another level compared to my experiences, and I genuinely believe this should be a compulsory education to help young people have more awareness in case it happens to them or someone they know.
I’ll keep following Jordan’s journey and I really hope there is some kind of positive news for him and his family.
Also a fantastic resource, especially for caregivers of those with all forms of dementia, is HILARITY FOR CHARITY - the non-profit founded by actor/writer/director Seth Rogen and his wife, Lauren.
🙌
Might be worth looking into.
It's beneficial for other parts of the body also and pregnant women take it for the development of the brain in babies.
“I Know I’m Going to Die of Dementia” | Jordan Adams
On The Mend with Matt Willis
33,484 views
Mental health and dementia advocate Jordan Adams grew up watching Frontotemporal Dementia slowly take his mum away. Years later, a genetic test revealed that he carries the same mutation.
Jordan shares the unique grief of losing someone while they're still here, and what it means to live knowing he may develop the same disease that took his mum.
But rather than allowing that uncertainty to define his life, Jordan has turned it into a reason to live more fully. He talks about finding purpose through advocacy, carrying his mum's spirit with him, and why his diagnosis has become what he calls a “license to live”.
This is a conversation about grief, mortality, purpose, and choosing what you do with the time you have.
Themes: Frontotemporal Dementia, Grief, Genetic Testing, Mortality, and Finding Purpose.
Learn more about Jordan's work:
Jordan and his brother Cian share their story, raise awareness of FTD and support fundraising for dementia research through The FTD Brothers - https://theftdbrothers.com
Randox 👉 Head to the Randox Health website and check out the RanChip Insight 360 test. You can get a 10% discount by using the code OTM10 along with up to £250 cashback if you refer a friend https://highpfrmc.com/OTM-Randox-YT
AG1 👉 Head to http://drinkag1.com/onthemend to save £20 on your first month, plus a free welcome kit, Vitamin D3 + K2 and five travel packs
00:00 Watching His Mum Die From Dementia
04:27 The Signs His Mum Was Changing
07:29 Telling Three Children Their Mum Was Dying
09:08 Caring For His Mum And Losing Her
10:21 Discovering Dementia Could Happen To Him
12:04 What Is Frontotemporal Dementia?
15:24 Losing Two Family Members In Nine Months
17:02 Alcohol, Depression And Spiralling Out Of Control
19:32 Hearing The Worst News Of His Life
22:18 The Family Trauma Of Genetic Dementia
24:07 Depression, Self-Worth And Losing Motivation
25:39 Facing A Future Of Early Death
26:10 Marriage, Children And Preparing For The Worst
33:26 Living Against The Clock And Choosing Life
38:31 The Pregnancy Decision That Changed Everything
42:04 Losing A Child And Turning Pain Into Purpose
43:13 Blackout Drinking And Escaping The Pain
46:21 Why His Diagnosis Became A License To Live
49:15 Running A Marathon With A 25kg Fridge
51:46 Running 100 Miles With No Experience
53:49 Thirty-Three Marathons Across Ireland
56:10 Fighting For A Future Without Dementia
58:15 Fixing The Gaps In Young-Onset Dementia Care
01:00:24 Building A Legacy His Mum Would Be Proud Of
Need Support?
Samaritans: Call 116 123 or visit samaritans.org
Narcotics Anonymous: na.org
Alcoholics Anonymous: alcoholics-anonymous.org.uk
Mental Health Mates: mentalhealthmates.co.uk
Shout: https: giveusashout.org
IAPT: https://www.england.nhs.uk/mental-hea...
Question for the community: which part of Jordan's story struck you the hardest and why?