WE NEED TO FIND A CURE!

I lost my mom yesterday so i know what your going through brother its not called the suicide disease for nothing RIP 😢

Dear Zach, my heart is with you. I am 39 years old and battling TN. I started to crying while listening to your mom's voicemail. I understand her desire to apologize but I also reject it because its not fair. Youre a kind person and son to see that in her. and to see that in the rest of us. It was your message to those of us fighting that made me truly hear your proud mom working through you. Thank you for sharing hers and your story.

The worst thing is that the drugs they prescribe for the treatment of TN are among the most dangerous and life-threatening side effects, and patients may experience increased suicidal ideation😞. Your mother was beautiful inside and out.👼

Thank you for sharing Your mother was very brave.   TN is horrible and I I'm glad she's pain free and eternally happy!  ❤

Thank you for sharing this! I’m 37 with bilateral trigeminal neuralgia. My heart aches for what you and your mom have gone through.
But God…..He can bring beauty from ashes. Love to you

3:38  I gasped with pain and agony watching  her in one of her awful pain episodes.  I have felt that.  Just like she is.  My first electric shock to my face was at age 25.  I am now 77 and still suffering with TN.  So sorry for your loss.

I was diagnosed in 2021 and the first thing i did was join support groups and follow others on social media and Kelly was one of the first people i followed.

I wish her medicines and treatments were discussed here. People want to know what works and what does not work for her and for themselves. Very sad video. She seems to have been an incredible woman.

I'm so sorry. I have it and know how terrible it is.

I'm sorry for your loss. I'm suffering 10 years now. It's terrible but I found ways of managing the pain. It comes and goes. I get it for 3 months every year

I am 53 years old, who have been leaving with TN. You are hero to come out and share what your loving mother faces TN and later lost her life. May her soul RIP..

The pain from TN is sooo bad that it literally takes your breath.. u were probaly the reason she held on as long as she did

Zach, I'm only at the point in this video where are are telling us that your mum passed away and my heart aches for you and your family. Your mum was a beautiful, courageous and wonderful woman and I believe she's watching down on you and guiding you.  I can't begin to imagine the hurt and pain you've been through in your life.  It's so tragic and I admire you for talking about this wretched disease ( I have also suffered from this).
You are a very articulate, handsome young man with a fabulous voice and I know you will make a great life for yourself. I'm going to finish watching the video now.  God bless you from Sheffield United Kingdom ❤xxx

I'm so sorry.  Mines is a little different as it affects neck and head but its excruciating beyond words.  I understand her completely.   You are just so sick and in pain that it's unimaginable 😢 I don't know how to get through this either.  You want to live for your family, but it's just too much 😢 I've bawled my eyes out at this.

I am living with the pain for 3 years now. Sorry for you loss.

I have trigeminal neuralgia. It is difficult, the pain is overwhelming. No one can know how bad the pain is. I try to remain strong for my family.

That's a Horrible Tragic Story. May she RIP.

I can't cry because it sets off horrible pain. But i wanted to because i understand the pain. It's unimaginably horrific. Thank you for making this. I have been in the worst flare-up ever the last few weeks, and it's just getting worse. Hoping the pain eases up soon.

I have endured TN for close to thirty years now.  It has most recently played a large part of ending my marriage of 35 years, but it has also held me back in innumerable other ways.  I fucking hate it, not sorry for the language.  I try to live by the lesson that pain is inevitable but suffering is optional, but that is often more of a mantra than the reality.  I do manage to hide it from all but the very closest people. I mean people know, but they don't really know.  So sorry about another victim, so sorry about all of the peripheral damage. I fucking hate it.