She says she had no childhood trauma, but she was born premature. It’s not just about what our minds view at trauma but also what our bodies view as traumatic.

This is so refreshing to watch someone speaking openly and positively.  Welcome to my world - living with Dercum's!

Thank you for this video, and for keeping it online even after all these years. So very helpful.

I’m just seeing this for the first time .  I’ve been trying to follow Dr. Herbst through the numerous symptoms of Dercum’s and Lipodema. I’m age 78, and after complaining for four years about my  painful “lumps” , which most Dr’s thought were RA nodules, a very wise Dermatologist did research after hours and came up with possible Dercum’s. Your talk was not only informative but intelligent and humorous.  I thank you for having the courage to put yourself out there and share your journey leading up to a definitive diagnosis. .  Last month I finally had a plastic surgeon remove three “ giant “; (their medical terminology, not mine ) lipomas.  6 cm x 5cm x4cm was the smallest one.

I would love to know how she is doing now in 2022.  Loved listening to her and her lovely sense of humor about this crazy disease. It's not easy.

I’ve developed a bunch of lipomas since my deployment to Syria. I’m 25 and it keeps growing and I’m glad you brought this up.

I am glad to have found this video. I am starting to suspect I may have this, thank you for sharing your story.

Thank you ! I have dercums and have had a carcinoid tumor removed and lung nodules and , and ,and. Wow…. Really validating to know I’m not alone. Thinking of seeing Dr. Herbst… someday. I’m in Washington state. You are awesome and brave.

Thank you so much..I enjoyed listening to your talk....I was diagnosed about 6 years ago at 45 but can look back and say I've had Dercum's since I was about 25 or so..I take one day at a time and keep looking forward :)

Thank you! I am a med student and this helped me a lot understanding the disease.

Thankyou was feeling a little lost and this helped pick me up x  I have them on and In my ribcage,  my stomach,  my spine,  my hips x I wish you well thankyou ❤

Thanks for sharing your story
Helps me thank you

Im starting to nodules everywhere now and I'll be 40yrs old in November 😢 I have had one removed as big as a grapefruit in my hip in 2016. It keeps coming back.
Yes i can't concentrate either, my sleep is terrible, getting dry mouth now, have depression and feeling tired all the time. I started Pinteresting masses and then I found out about Dercums. Thank you so very much for this video ❤❤❤❤

Great job.  Thank you for sharing.  Keep researching.

Wow how interesting

I use vibration in am, take muscle relaxer, take quetiapine to sleep. Wear compression and do geentle stretches.

I, too have a mass in my chest where a differential is either a pulmonary carcinoid or a pheochromocytoma. I have been observed for 4 years via CAT scans and it has not grown. I  believe I have diverse Dercums as well. I also have MCAS. AS a result, surgeons classify open chest wall surgery for me to be high risk and not one has attempted a biopsy. Question for you...aren't you scared that each new lipoma is indeed a carcinoid?I see Dr. Herbst in June. Thank you very much for this interview. I had to skip this year's convention because of an unexpected surgery on my hubby.

I have DD and Lipedema too. I'm really good at the "Guess your weight" game at Cedar Point. Its one small DD perk amongst many challenges.

It's like you are telling my story. I even have a big lipoma right where my bra goes too but on the left side. Drs always tell me "you're just lumpy"

I had all that.