maybe you put, oh, i don't know, a definition of wtf is FND in the title, under the title, in the description below or a pinned comment here heading the comments???
¯\(°_o)/¯
oh, here, i googled it
FND=Functional
Neurological Disorder.
              🧱🤺

I only just came across this video, but it gave me a much needed cry as someone just diagnosed with FND and really struggling with not gaslighting of beating myself up over it. Thank you for your kind and considerate, as well as clearly explained and helpful video

Wow, Thank you for your video, I actually watched it twice just to get my head around some of the things you said. Only being diagnosed in September 2023, I find it difficult when a lot of doors appear to get slammed in my face. Maybe not appear, they do get shut quite often. Some Doctors receptionist need a lesson in humanity, as if it is not difficult enough. Apologies, a bit frustrated.  I really liked the way you explained  FND and triggers. Especially the circles, Safe, Learning and Danger, I am at the stage of trying to deal with this and I find the Safe zone pretty easy to be in, although it is very boring. The learning zone and the Danger Zone has a very fine line and I cross it every day. Part of my problem is that over the last 60 years, I have been told to give 100% or go home. Now I have to pace myself, use breathing exercises, distractions and anything else to get me to slow down. So frustrating. Take care and much love.

I just watched your video and it made my cry. I’m lying here as an in-patient in a hospital bed for 11 days now. Came in my ambulance after having what looked like a seizure in the street. Not my first one as I’ve increasingly had more and more since March last year following a simple viral infection. Experiencing all the symptoms you’ve described. Had all the tests possible, all coming back unremarkable. Just saw a neuro psychiatrist yesterday who told me I have FND. Hoping to get out out of here soon but need a plan of how I’m going to manage the 20+ seizures every day! So here I am finally with an explanation. Your video has made a world of difference. God bless you❤❤❤❤

Thank you for sharing this video, and your analogy of train tracks was actually quite meaningful. My approach has been less eventful, since being diagnosed since September of 2021. I was informed that I had two bleeds on the brain, and for 18 months it was a slow haul in recovering. I pushed myself as I always do, as I'm not one for giving up.

The list of symptoms fluctuate at any given time. For me being poorly can simply be extremely tired or fatigue to the point that I can be in bed 12 -18 hours in a day and that can be 2 or 3 days on the trot. The difficulty, was worrying about becoming bed bound, as naturally your body isn't getting any exercise and your muscles are turning into flab.

The list of problems

1. Headaches 2. Tiredness. 3. Vertigo if I stood up at times. 4. Sensitivity to light, so laying in a dark room. 5. Fatigue after the tiniest task. 6. Loss of appetite, 7. Loss of smell and taste. 8. Involuntary movements of my limbs, which is worrying. 9 Pins and needles in fingers of both hands and it varies from day to day. 10. Exhaustion from any mental processing after about one hour, one hour and fifteen minutes.

This was at the very out start, and whilst it is variable it feels like my life is settling down in a fashion. Inasmuch as I seem to be able to cope better.

My coping strategies.

1. listen to what your body is telling you. So if you're exhausted don't be trying to push yourself to complete your to do list for that day.

2. Be realistic, everyday is a bonus. So enjoy being alive everyday.

3. Set yourself very small achievable tasks and over time just slowly increase them, this helped me to build up my stamina, and my concentration, and my determination.

4 I push myself to go out and socialize, for a few hours a week. It can be very demanding, but as long as you remain in control, it is actually very refreshing inspiring, and recharges your "Well Being"

5. I have a hobby like "Art" it gives me great pleasure and it passes swathes of time, without me even trying.  I love writing, so I write Poetry and short stories when I can.

Things to avoid

1. Alcohol can act like a downer.
2. Miserable people as they can drag you down as well.
3. Worrying about  the "What if" things that may or may not happen.
4. Self - Pity Parties as they are not attractive, and tend to be always when you're on your own.

I hope this helps others.

I was just diagnosed with FND yesterday, 5/18/23.
Thank you for making this video.
After 13 years of being tested repeatedly for ms, and shamed for not having it, the diagnosis was shocking, and very upsetting.
My family thinks I'm a hypochondriac, and now they think I'm an emotional faker.
I'm waiting for an appointment with a specialist in Boston, but it could take many months.

Thank you for sharing this very helpful video. It is a while since I was diagnosed with FND and I still know very little about it. I know my brain is warped or damaged but find everything overwhelming sometimes as I try to figure out what has happened to me and how to get back to "normal" again. I have been guilty of trying to force my body to do what I expect of it but this has resulted in injuries including broken bones, unbearable fatigue, chronic pain, depression, anxiety... and the realisation that the screwed up brain and body I now have is normal for me now though I don't like it. I have subscribed because it is such a relief to hear you talking and to feel not so alone. God bless you. Vera from Northern Ireland

I have fnd and thankyou because hearing someone else explain so well what it's actually like that I cried since I was diagnosed 3 years ago I've been left to get on with it by myself I don't get any support at all because I look ok but everyday is such a struggle for me .

Just been diagnosed after years of being told “it’s all in your head” mind blowing 🤯

Just came across this video.
Thank you ❤️
I don’t have FND but I do suffer from crippling anxiety and I found listening to your thought process really calming for me in terms of my self doubting etc.
Wishing you every happiness.

I was just diagnose with  FND❤️ It was found during an ER visit and it fuels my anxiety reponse

that is me right now, my legs get so weak when I walk, I walk like a zombie, studder talking, seizures, tremors, migraine, the loud ringing in my ears. I got diagnosed with Pnes

4 years of mystery messed up legs and hardly able to walk, and here it is. Thank you!!! My life is garbage and humiliating. I will focus on this ailment, maybe I can improve.

Thank you so much for this video. I’ve struggled so badly to be believed and managed the panic and f or f. It’s separating me from understanding and support. This is helpful to share. Thank you 🙏🏼

Thank you for your beautiful, honest, description of FND as I am going through this. Gives me ammo for my providers.

As an Fnd Warrior.. Thanks for posting ❤

I’m on the same mission.  Thanks for this video. I recently did a mind mapping test. It shows very high beta.  I think there is link between brain waves and fnd.

I just recently got a diagnosis of FND on top of my Narcolepsy and this video is very helpful and I needed it.
I Really appreciate you taking the time to make this.
One of the hardest things for me is accepting it and not being hard on myself. As I feel you can always do mind over matter but for me right now I cant really do that as it comes at a cost. Everyday I have another symptom besides my staggered walking pain, and stability issues. just yesterday I had a moment of 1 hr were I could not talk or make any noise but was thinking clearly just could not get my vocal cords to even make a grunt noise. Before an after I could talk thank god. But I was stuttering  and having a hard time with words etc… and it’s hard when your use to helping everyone else and being their for them to know be the one were everyday is an adventure and you have to start allowing yourself to be ok with needing help.

I have tremors, body drop, speech issues, vision problems, gate and balance issues, memory/brain fog along with many other things. I never know how each day is going to play out.
I can ride a bike for 20 mi.es but get exhausted walking the 30 feet to the mailbox.
My bodyalso no longer regulates heat properly anymore. Summertime here is a nightmare for me. Confinement, large groups of people, and temps are big triggers for me.
I just try to stay positive, be kind to people(when I can be around others), and try to have the fullest life I can.
Its all I can ask for.
I hope all of you here have a better day today than yesterday.  Here's to having a better tomorrow.

Dislocated left shoulder and improper sleep, never been the same since