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Living with Myeloma | Elise’s Multiple Myeloma Story (4 of 4) | The Patient Story

The Patient Story

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In this video, Elise dives into the most personal parts of her cancer experience and the lessons she’s learned so far, including the importance of self-advocacy, how she has been able to move forward mentally and emotionally, and how finding a cancer community has helped her day to day.

Series background: Elise was working and raising two young kids when she was diagnosed with multiple myeloma, a type of blood cancer. In this video series, she shares about every part of the myeloma experience so far, from how she got diagnosed to being a part of a clinical trial that’s been working, to diving into how she has been able to live with myeloma.
(Time codes below for easier video navigation.)

Full story & transcript →

1st Symptoms
https://www.thepatientstory.com/cance...

Treatment Decisions
https://www.thepatientstory.com/cance...

Clinical Trial
https://www.thepatientstory.com/cance...

Living with Myeloma
https://www.thepatientstory.com/cance...

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Website : https://www.thepatientstory.com/
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Twitter: @patient_story

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Contents of this video:

0:00 - Living With Myeloma
0:49 - Importance of patient self advocacy
3:50 - Hardest part since cancer diagnosis
5:23 - What has helped move you through the most stressful times?
8:26 - Approach to researching myeloma?
10:34 - Elise & her husband approach life with cancer.
13:04 - Financial Stress during cancer treatment
14:47 - Monitoring the body for any signs of myeloma
18:48 - Importance of finding your cancer community
19:54 - Dealing with the cloud of Relapse
21:10 - Looking Sick
22:14 - Thank you, Elise
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Thank you to Karyopharm for its support of our educational program. The Patient Story has full editorial control of our content. The interview has been edited only for clarity.

#ThePatientStory #Cancer #MultipleMyeloma

4 Comments

@simil252 2 years ago

Elise I wish you always to be healthy. I’m in Canada too and I wouldn’t accept a treatment without transplant, even with MM in remission. The Myeloma is more sensitive when first caught, if you wait years before the first transplant, you might not have same benefits. I’m scheduled for my transplant begin of next year…it won’t be easy I know, but I would not sleep at night knowing that my cancer could come back stronger anytime, especially if I’m aging in the process.

@MarthaGarrett 3 years ago

These have been very interesting and informative interviews. Thank you

@LinRaeFraz 5 years ago

This conversation confirms my thoughts and actions. Thank you!

@californiadoll6273 4 years ago

Doctor's don't know everything. Most soley have the degree only because they paid for the degree and not because they deserve it. I went to 3 different hospitals and got diagnosed with 3 different things, they started giving me i.v antibiotics, my kidneys started failing because of it. Long story short i ended up leaving the hospital. Come to find out all 3 hospitals were wrong and i literally never had anything wrong with me. I was cleaning a wound with alcohol and it irritated it, it was never infected. I got diagnosed with 3 different infections that I never had. I'm in the process of suing the hospitals. I'm 28 years old, healthy. I lost all faith in hospitals. All they want is to profit off you.